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Someone's like me.

I was back in at the LBMT Thursday afternoon for blood work, hickman line flushing, and news. The good news is that there seems to be a very good chance that they have found a bone marrow match for me.  Dr. Bernard, who gave me the news, said a "95% chance" - mostly to give an out, as there are a lot of things that can go wrong still. I don't know how far along they are in the process with the donor but they are looking at starting the transplant in the next 2-3 weeks, early-mid October.  I will know more shortly after a yet to be scheduled meeting with Dr. Nevill. So, if you are one of the recent people who signed up for the registry, and have been magically called as a match, you might very well be my blood brother/sister so to speak - lol. The coming transplant scares the willies out of me as it will be the most intensive event I have been through in this whole thing, since the start over a year and a half ago.  Any grief, discomfort, etc.  I have been ...
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Day 17 - Hey, it's Saturday.

Ok, it's official.  I have been in here too long now, as I no longer know what day of the week it is. I seems the graft is starting to settle in.  The white count is up to 0.7, and the others are falling very slow.  The platelets might be gaining, but I had a transfusion yesterday so it's hard to tell.  (I don't have the 'post transfusion' counts). I am NOT feeling much better though.  I am still sleeping/zoned out/etc. through the day, and having crazy dreams, etc. and uncomfortable sleeps through the night.  It hurts to swallow.  So, when your crazy thirsty at night, because you have been sleeping with your mouth open, because your nose is blocked up from not being able to blow it due of nose bleeds, you are in for a world of hurt. I have managed to build up enough get up and go to get the computer on to post on the blog, check facebook, and put some audio-books onto my mp3 player. My blood sugar level was a bit high in my morning blood tes...
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So, here I am.  Again.  Level 15 at VGH.  I am in a room with another guy who is also on his second kick at the can.  Last night was shit.  The hickman surgery sites were so bad that the pain felt it was coming from everywhere.  Back, Arms, Neck, etc.  I normally sleep on my side, and the pain was preventing that.  They gave me a codeine, then another codeine and it wasn't having any effect. Just sitting up, on the edge of the bed became the least painful.  I guess at some point, while sitting on the edge, I figured I would just rest my head on the bed table.  It must have been comfortable enough, because  I fell asleep and Shoban (my nurse) woke me up. He spoke with a doc and I was loaded up with some Morphine.  I fell asleep in about 10 minutes, and stayed asleep till dawn (about 3 hours). Up early this morning for standard chest x-rays, and later today/tomorrow I will be getting an ECHO heart scan to make sure my hea...
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