Someone's like me.
I was back in at the LBMT Thursday afternoon for blood work, hickman line flushing, and news.
The good news is that there seems to be a very good chance that they have found a bone marrow match for me. Dr. Bernard, who gave me the news, said a "95% chance" - mostly to give an out, as there are a lot of things that can go wrong still.
I don't know how far along they are in the process with the donor but they are looking at starting the transplant in the next 2-3 weeks, early-mid October.
I will know more shortly after a yet to be scheduled meeting with Dr. Nevill.
So, if you are one of the recent people who signed up for the registry, and have been magically called as a match, you might very well be my blood brother/sister so to speak - lol.
The coming transplant scares the willies out of me as it will be the most intensive event I have been through in this whole thing, since the start over a year and a half ago.
Any grief, discomfort, etc. I have been though will pale in comparison to what I might be going through during the transplant. It's also a very "all or nothing" procedure since they will be destroying my marrow beyond repair - so the transplant better work, or I am in a bad way.
I am not scheduled to go back until Wednesday now, but there are a whole bunch of tests (including another biopsy) they will be doing on me in the next few weeks, so there will be some appointments yet to be made.
The good news is that there seems to be a very good chance that they have found a bone marrow match for me. Dr. Bernard, who gave me the news, said a "95% chance" - mostly to give an out, as there are a lot of things that can go wrong still.
I don't know how far along they are in the process with the donor but they are looking at starting the transplant in the next 2-3 weeks, early-mid October.
I will know more shortly after a yet to be scheduled meeting with Dr. Nevill.
So, if you are one of the recent people who signed up for the registry, and have been magically called as a match, you might very well be my blood brother/sister so to speak - lol.
The coming transplant scares the willies out of me as it will be the most intensive event I have been through in this whole thing, since the start over a year and a half ago.
Any grief, discomfort, etc. I have been though will pale in comparison to what I might be going through during the transplant. It's also a very "all or nothing" procedure since they will be destroying my marrow beyond repair - so the transplant better work, or I am in a bad way.
I am not scheduled to go back until Wednesday now, but there are a whole bunch of tests (including another biopsy) they will be doing on me in the next few weeks, so there will be some appointments yet to be made.
Comments
But then again....
If there's one thing I've learned through all this, it's never to assume you know ANYTHING!
Ryan
Our prayers are being listened to!
Kim and Nathan
this is wonderful news. we will be sending all the good vibes, prayers, whatever it takes your way. if there is anything that we can do from afar, please let us know. until then, keep fighting the fight and know there is so much love and support coming to you from many different angles.
/hugs
stacy and ryan (emotyn and rakile)
Aili