At home

Sorry, a little late on this post.  They gave me the all clear on Monday afternoon to not have to come back to the LBMT until Friday morning.  I took the opportunity to get myself home as quickly as possible.

I still feel like crap, and have no energy to do anything.  This is the first time I have turned the computer on since I have been home.

Tomorrow morning I am back in the LBMT for another bone marrow biopsy.  This one will see if the 4 week hospital adventure resulted in remission or not.

I am still not too sure what happens (and no one I ask seems to have anything more then a vague idea) after the results are back.  I know that I currently have no match for transplant.  If I am in remission, then it seems I get to wait and have some "do it yourself at home chemo" every so often to try and keep me in remission, and if I am not, then it's probably back into hospital for another try.

Hopefully some of my energy will start to come back, and I can pretend to be myself for a few days.

Special shout out to Tony - I'll keep any eye on the board as well to see if you're in when I am.  I don't know what they have planned for me after Friday, but I doubt I'll get too much freedom.   Congrats on the 12 week chemo break !

Comments

Anonymous said…
Hey Richard,

So excited that you are finally home with Sonja and the kids. Must be nice to be back in your own house with your own bed and your own stuff and all the fam around. Sucks that you have such little energy but you're such a trooper. Thinking about you and the fam lots. Hope I can see you guys when you're feeling up to it.

Cheers,

Ryan
9/19/2010 12:54 AM
Post a Comment

Popular posts from this blog

Someone's like me.

I was back in at the LBMT Thursday afternoon for blood work, hickman line flushing, and news. The good news is that there seems to be a very good chance that they have found a bone marrow match for me.  Dr. Bernard, who gave me the news, said a "95% chance" - mostly to give an out, as there are a lot of things that can go wrong still. I don't know how far along they are in the process with the donor but they are looking at starting the transplant in the next 2-3 weeks, early-mid October.  I will know more shortly after a yet to be scheduled meeting with Dr. Nevill. So, if you are one of the recent people who signed up for the registry, and have been magically called as a match, you might very well be my blood brother/sister so to speak - lol. The coming transplant scares the willies out of me as it will be the most intensive event I have been through in this whole thing, since the start over a year and a half ago.  Any grief, discomfort, etc.  I have been thoug
Read more

Thurdsay - My New Nemisis ?

Wow. Today was nasty. Tossed and turned most of the night, and then barfing in the morning. Nothing to come out, just there to taunt me, and let me know who's boss. Then there was the tightness of the chest, and some pain in my arm. Well, that started a flury of activity. ECG, blood work, etc. ECG looks good, there were some blood signed that the heart might have been in distress. They will be putting me on some drugs to help my heart mellow out just in case. It's all fine now, but they are being on the safe side. Tired. So very tired today. I slept most of the day, and I am only now getting into doing some stuff on the computer. Catching up with work, blog, etc. I don't have my totals for today, but the platelets and red blood cells mean I will probably be getting a transfusion tomorrow. I got to have a shower today - Yippie ! My last bag of the nasty "Red Koolaid" of death was today, so only the one Chemo drug left on tap. Still a potent brew at that, bu
Read more

Day 36, 37 - You're Fired !

Image
Day 36 - Thursday Ok, so today was another decision day.  Would the stat's be stabilized or would I get a transfusion ? Determined to be going home no matter what, I had checked out of the Lodge at 9am, and my luggage was down at the reception.  I was still there until around 12:30 when I said my goodbyes to some of the other inmates, and left for my 1pm appointment.   W 3.7 / N 1.7 / H 100 / P 60 All Up with last transfusion on Sunday. So, they start consulting if they should remove my Hickman line or not.  Just after 3pm, the decision comes down that they will remove it. At this point I feel it looks good that I will be able to have my next appointment be a week away, or at least until Monday, thus giving me the weekend. Around 3:15, Dr. Teshpar comes in to remove my Hickman line.  Most of the female doctors are more compassionate, but have a lot of difficulty when it comes to the "Causing Pain" stuff like biopsies, etc. Dr. Teshpar was not happy about h
Read more