Day 45 - Half Way

Today was a 10am appointment.  Got out early for the about 2 hour commute, and arrived on time.  They still wanted to do fluids today, so I was already into a 2 hour appointment.

The platelets are down again, to 64.  Quite a drop, and due most likely to one of the drugs I am taking to prevent a type of pneumonia that I can get from the ciclosporin.  I only take that drug on Monday and Thursday, which are both days where my platelets were low.

So, now the solution is to get an IV alternative (2 hour drip) once ever two weeks.  They started today, so my appointment became an extra 3 hours longer.  There were a whack of side effects I could get, but other then a bit of nausea it was ok.  

Ugg..  Didn't get out until about 4pm, smack dab in rush hour.  Long slog home, and just bagged out on the couch now to write the update.

It's been a long day.  I have until Monday to recuperate to do it again.

Comments

Post a Comment

Popular posts from this blog

Someone's like me.

I was back in at the LBMT Thursday afternoon for blood work, hickman line flushing, and news. The good news is that there seems to be a very good chance that they have found a bone marrow match for me.  Dr. Bernard, who gave me the news, said a "95% chance" - mostly to give an out, as there are a lot of things that can go wrong still. I don't know how far along they are in the process with the donor but they are looking at starting the transplant in the next 2-3 weeks, early-mid October.  I will know more shortly after a yet to be scheduled meeting with Dr. Nevill. So, if you are one of the recent people who signed up for the registry, and have been magically called as a match, you might very well be my blood brother/sister so to speak - lol. The coming transplant scares the willies out of me as it will be the most intensive event I have been through in this whole thing, since the start over a year and a half ago.  Any grief, discomfort, etc.  I have been thoug
Read more

Thurdsay - My New Nemisis ?

Wow. Today was nasty. Tossed and turned most of the night, and then barfing in the morning. Nothing to come out, just there to taunt me, and let me know who's boss. Then there was the tightness of the chest, and some pain in my arm. Well, that started a flury of activity. ECG, blood work, etc. ECG looks good, there were some blood signed that the heart might have been in distress. They will be putting me on some drugs to help my heart mellow out just in case. It's all fine now, but they are being on the safe side. Tired. So very tired today. I slept most of the day, and I am only now getting into doing some stuff on the computer. Catching up with work, blog, etc. I don't have my totals for today, but the platelets and red blood cells mean I will probably be getting a transfusion tomorrow. I got to have a shower today - Yippie ! My last bag of the nasty "Red Koolaid" of death was today, so only the one Chemo drug left on tap. Still a potent brew at that, bu
Read more

2012

2012 I made it to another year ! Yay me! Another stellar delay before posting an update, but it has been a very busy time - work, Halloween, work, trip to the Island, work, Christmas, work, New Years, work. In my last update, I was off Prednisone, and now, I am off Cyclosporin. I am still on the Anti-Pneumonia, Anti-Viral, and blood pressure pills until the end of the month, and then I can stop all but the blood pressure pills. So far everything has been clear for GVHD, but my energy levels have been taking a pretty big hit. Next doctor visit is in March.
Read more