Before the War

Come home, get a cold. Immune system so far seems to be working and keeping it in check.  No fever, and it is playing out like a good old fashioned cold. Interesting change to be sick for a normal reason.  Too bad it is on top of everything else.  I have probably been doing a bit too much when I should have been resting.  A bit of freedom and I don't know what to do with myself. The Thursday appointment went well.  Platelets are above 40 now, which has been a very long time in getting to.  Hemoglobin is holding around 90.  Drug induced diabetes is getting a bit easier to deal with now that the offending drug is starting to be tapered off. Next week is my normal appointment, plus some more time back at the lodge while I go through some more of the Day 100 tests.  It's going to be a pretty exhausting week.

Two steps forward, one step back.  Dance. Quick update - Biopsy test back.  Still all clear of Leukemia, bone marrow looks good.  Good News. Two steps forward. Blood tests for the day came back, and my Hemoglobin was down to 82.  Transfusions are done at < 80.  To keep me out until Monday, I got two bags of red cells.  First transfusion since being in the hospital.  Spent the day at the LBMT. One step backwards. They are not too concerned. I am not "too" concerned. I have made it home for the weekend, I will be back at the lodge on Sunday night for my Monday appointment.  I am hoping for some good bloodwork on that Monday, and check out of the lodge on Monday afternoon with my next appointment on Thursday.  I will probably be making more use of the lodge for 1 night stays for the tests coming up. If the bloodwork is not what I am hoping for, then I guess the plans will be different.  One day at a time.

Twas the night before Biopsy, when all through the lodge every inmate was stirring from the alarm on the Dodge. The stockings were tossed to the bedside floor dregs,  they had caused quite a swelling the the dry lower legs. Patients were nestled, not snug in their beds, as they argued over snoring, and temperature, and who would shower first, or who would just hog the bathroom and  be an all around jerk to the other person.   But, that is another story, and someone elses problem, because I am rooming with my Mom, who is no where near as bad of a jerk as some of my other room mates, and more importantly, it's Monday the 17th, and besides being my Step Fathers's Birthday, it's HAPPY BIOPSY DAY ! I hope you all had a great Biopsy Day ! Sonja failed to get her paperwork in, so once again, it was just me getting a biopsy this time around.  Mom mumbled something about being too old for the biopsy.  There was this other guy there getting one, and he wa...

Sorry. This is the first time I have turned on my computer since my last post. Things have been pretty rough. If you have been following Sonja's blog, then you have an idea of what's been going down. On the Sunday, way back in December, during the Toilet Install weekend, I started to feel some discomfort when taking a leak.  Well, over the next week it just started to get worse.  I wound up getting bladder spasms, a lot of blood in the urine, and passing a lot of clots. It started getting worse, and I couldn't be away for a toilet for more then a few minutes.  The pain (and mess) was unbearable.  I was in at LBMT for my fluids, and by the end of the appointment, I was being admitted back into T15.  The writing was on the wall for having a pretty bad Christmas.  Things are finally starting to return to normal for the bladder, but I can barely walk because of the Prednisone.  It messes up the upper leg muscles.  I was able to get hom...